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for general information research by medical professionals & sufferers (information researched, collected & compiled by a long term chronic behet's disease sufferer) world wide web www.behcets.info description "behets disease is a multisystem inflammatory disorder characterised by recurrent oral ulcers, genital ulcers and ocular inflammation, and which frequently involves the joints, skin, central nervous system (cns) and gastrointestinal tract. classified as a systemic vasculitis, it can involve both the arteries and veins of almost any organ. the aetiology of behets disease remains unknown, but the most widely held hypothesis of disease pathogenesis is that a profound inflammatory response is triggered by an infectious agent in a genetically susceptible host". (sara e. marshall mb bch, mrcp (ire), mrcpath (uk), phd senior lecturer in immunology wright fleming institute, imperial college school of medicine, norfolk place, london w2 1pg, uk) an introduction to this web-site i have suffered from behet's disease since circa 1982 - in those days it was generally referred to as behet's syndrome (correctly pronounced beh-chets [ info . ]. the incorrect pronunciation seems to be widespread amongst the medical fraternity in the uk & other english speaking parts of the world - perhaps being a primary indicator of most doctor's general depth of knowledge of this rare & debilitating disease. the purpose of this web page is not to highlight general medical ignorance about the condition, or to point to inadequacies among individual health care professionals, to the contrary, it is to provide a good basic knowledge to the reader (both medical professionals and sufferers alike) about behets disease in the hope that it will aid the professional in providing quicker diagnosis and treatment with corresponding faster, and equally importantly, more efficient relief from the symptoms for any sufferer. on numerous occasions during my medical treatments (for various ailments over the years but mostly associated with behets) i have been habitually confronted with doctors & other medical staff who are hampered by their inadequate basic knowledge of this disease. consequently a lot of their time, my time and the important time needed for quick diagnosis and correct treatment ( because the vascular and sometimes neurological involvement of bd can be significant and life-threatening, so diagnosing and treating vascular involvement early is vital) has been inefficiently used because - quite rightly - doctors cannot be solely guided by the information given to them verbally by a patient who is usually a medical lay-person. due to this, tests are often carried out unnecessarily and often periodically repeated by others, because doctors do not have the confidence to eliminate certain likelihoods from their diagnosis because of a degree of ignorance about the manifestations of this disease. armed with a little more detailed knowledge, many of the processes of elimination in the diagnostic procedure stages could be done away with. it is my belief that many other sufferers of this disease also experience the same problem. i have a perennial debate with new doctors that i have contact with, because - as an example - they often insist that what they are witnessing is an infection rather than inflammation! invariably treatment starts with antibiotics. when a course of antibiotics fails to resolve the problem (often with the reverse effect of aggravating the inflammation) the patient is finally administered an anti-inflammatory preparation! of course not all the problems that i, or other sufferers have, originate with behet's disease. i have my fair perceived need for antibiotics prescriptions, like all others seem to have in the western hemisphere's medical practices, however it is important for the medical practitioner who treats me (or others like me) to understand the mechanisms of this disease, and be able to attribute certain symptoms to it when treating a patient who has the disease. i have taken the initiative to compile this web-site and publish it on the internet in order for any medical people who want more detailed in depth information to be able to access it via the information collected here from various specialist sources and my own personal research over three decades. following a constructive discussion some years ago with my very helpful and supportive gp at the time, who has now retired from his practice, i agreed to his suggestion that i should construct this web-site and that the site's url address be included in my medical file so that it is easily accessible to anyone who may treat me in the future. this site may also be accessed by fellow sufferers, who may find it helpful to understand their condition, and if they so choose, can pass the site's url address on to their own gps, hospital medical staff or any other medical practitioner who may benefit from the contents. please feel free to use the information at will and to circulate references to it as you see fit. there are no copyright restrictions - as long as credits are attributed to authors of any information that is written or published by the users of the material provided here. the remainder of this web-site is made up of information - as i have previously said - i've researched and documented over the years. where appropriate, references have been made to source material and there is a table of useful links to other websites that contain similar information that you may wish to research yourself. simply click the 'links' tab at the head of this page. before browsing the remainder of this web-page it is recommended that the reader downloads and reads a pdf document containing an excellent paper authored by sara e. marshall mb bch, mrcp (ire), mrcpath (uk), phd senior lecturer in immunology, wright fleming institute, imperial college school of medicine, norfolk place, london w2 1pg, uk - a small excerpt from that document has been reproduced as an introduction at the top of this page. the download document requires your computer to have a pdf 'reader' programme installed on it. if you have this software already installed the document will open automatically. if you do not currently have this type of software installed you can download & install it now for free by clicking on the 'get adobe reader' icon on the right: audio/ visual information about behet's disease please click on the "podcast" icon on the right to hear a joint talk in the form of a question and answer session given by drs. yusuf yazici, md (hosting) and hasan yazici, md. this talk was given at the behcet's syndrome centre in new york city - in november, 2006. you may download & save the file which is in mp3 format. it can also be played directly on your using any media player software. playing time is approx. 30mins. please view these videos on the right that explain the symptoms, diagnosis & care required for behet's sufferers. they are real life accounts from people who suffer with behet's disease. dr. yusuf yazici (one of the leading doctors involved in the field of behet's & who is also featured in the pod cast above) gives a commentary in the sanya richards video. some sufferers have chronic symptoms others have milder initial symptoms (like sanya richards). in all cases behet's can be a truly serious, painful and dangerous condition as by it's very nature it can attack virtually any organ in the body. whilst fatalities due to the symptoms are relatively rare, although complications due to the symptoms (especially the neurological and cardio vascular manifestations of the disease) can cause mortality. even when not life threatening, behet's disease can severely handicap people who suffer with it. many chronic sufferers cannot execute simple daily tasks and often require 'carers' in order to function on a daily basis. others who have milder symptoms may be more fortunate. as with many autoimmune syste

URL analysis for behcets.info

https://behcets.info/#local_therapy
https://behcets.info/#2-topical_treatment
https://behcets.info/links_page.htm
https://www.behcets.info/books_resources.htm
https://behcets.info/#photographic_examples
https://behcets.info/#age
https://behcets.info/#crohn_disease
https://behcets.info/#pathophysiology
https://behcets.info/#pathergy_(skin_hyperreactivity)
https://behcets.info/diagnosis_page.htm
https://behcets.info/#2-anti-tnf-α agents
https://behcets.info/#for_general_information_research
https://behcets.info/#2-azathioprine
https://behcets.info/#surgical_care
https://behcets.info/#2-neurologic_involvements
behcets.org.uk
bartshealth.nhs.uk
swbh.nhs.uk

Whois Information

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Domain Name: BEHCETS.INFO
Registry Domain ID: D25595912-LRMS
Registrar WHOIS Server:
Registrar URL: http://www.planetdomain.com.au
Updated Date: 2018-06-20T01:06:33Z
Creation Date: 2008-07-20T17:21:13Z
Registry Expiry Date: 2019-07-20T17:21:13Z
Registrar Registration Expiration Date:
Registrar: PlanetDomain Pty Ltd
Registrar IANA ID: 240
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +61.299340501
Reseller:
Domain Status: ok https://icann.org/epp#ok
Registrant Organization: Y Gwefeistr
Registrant State/Province: Cymru
Registrant Country: GB
Name Server: NS1.CLOUDHOSTING.CO.UK
Name Server: NS2.CLOUDHOSTING.CO.UK
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form is https://www.icann.org/wicf/
>>> Last update of WHOIS database: 2018-12-08T23:22:27Z <<<

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  REFERRER http://whois.afilias.info

  REGISTRAR Afilias Global Registry Services

SERVERS

  SERVER info.whois-servers.net

  ARGS behcets.info

  PORT 43

  TYPE domain

DOMAIN

  NAME behcets.info

  HANDLE D25595912-LRMS

  CREATED 2008-07-20

STATUS
ok https://icann.org/epp#ok

NSERVER

  NS1.CLOUDHOSTING.CO.UK 77.72.0.13

  NS2.CLOUDHOSTING.CO.UK 139.162.254.53

OWNER

  ORGANIZATION Y Gwefeistr

ADDRESS

  STATE Cymru

  COUNTRY GB

  REGISTERED yes

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